Tuesday

Eyes and Fibromyalgia

 As I write this about the eyes and if fibromyalgia affects them I have noticeably dry eyes. It will probably take me a few sittings to finish this article due to my own eye symptoms which also include blurry eyes. I always need the font to be larger and I hope this helps you too.

Eye symptoms and Fibromyalgia

Of course there are many reasons for eye symptoms such as dryness which include Sjogren's syndrome and some medications. 

I wanted to write this article as people often do not think that their eye concerns could be related to them having fibromyalgia. So here I will include all the research I have found about fibro and the eyes specifically from studies that have been done and also some suggestions for coping with these eye conditions.

Dry Eye Syndrome Risks in Patients With Fibromyalgia: A National Retrospective Cohort Study 2016. In this large Taiwanese study they found that the risk of Dry Eye Syndrome (DES) in Fibromyalgia (FM) patients was significant and that the risk was greater among men than woman, which was consistence with the findings of a previous study. They also found that FM patients were getting DES at an earlier age than the people without FM. 

  •  The overall incidence rate of DES was 7.37/10,000 in the FM population, and 4.81/10,000 in the control group. 
  • The age-specific incidence rate was highest among those 50 to 64 years in the FM population. 
  • The incidence rate was highest among those aged 65 years and older in the control group.

Discordant Dry Eye Disease (An American Ophthalmological Society Thesis) Discordant, in this context, means having dry eye symptoms but a normal eye examination. 

In addition to having widespread pain and other somatic symptoms, individuals with FM and other centralized pain conditions have significant ocular symptoms, often in the absence of clinical signs of ocular surface dryness. Recent studies that examined this phenomenon found that patients with FM have more dry eye symptoms than healthy controls. Interestingly, these individuals were found to have reduced corneal sensitivity as compared to controls, so we measured both corneal and systemic sensitivity in this study. The results of this in depth study showed that people with discordant dry eye had substantial similarities to patients with FM.  There was a lack of ocular surface changes on examination in some who complain of dry eyes, as Central Nervous System processes are responsible for much of the discordance between the severity of symptoms and the degree of ocular surface damage. 

Fibromyalgia syndrome and the eye - A review states that:
Fibromyalgia can be associated with ocular symptoms (foreign body sensation, irritation) and visual disturbances (blurred vision), coexisting with dry eye syndrome and reduced corneal sensitivity.

It also says that research shows that there are changes that can be seen in the eyes of people with FM which include the choroid being significantly thinner. The choroid is part of the vascular layer of the eye, and contains connective tissues, and lies between the retina and the sclera

What other eye symptoms may be seen in Fibromyalgia?

"Patients can commonly experience symptoms of eye pain, sensitivity to light, blurred vision and fluctuating visual clarity, difficulty focusing, visual overload and dry eyes," Dr Mark Pellegrino explains. 

Experiencing eye issues can be very disconcerting especially after having eye tests and being told nothing is wrong at all. Following are some strategies for treating eye issues.

Dry eyes ~ For relief from dry eyes, try:

  • artificial tears which you can purchase over the counter (Try preservative free ones
  • wear glasses instead of contact lenses which dry the eye surface
  • punctal plugs 
  • assess medications that you are taking with your doctor to see if any are causing dry eyes
  • use humidifiers for extra moisture in the air
  • blinking more frequently
  • dietary supplementation with omega-3 fatty acids such as flaxseeds
  • read more information about dry eyes
Blurred vision
  • check your glasses prescription more frequently 
  • look to the long distance more frequently to rest your eyes
  • when reading you may find a different font size that suits you better eg some prefer to read large font books available from libraries 
  • Try audible books available from libraries and online
Eye pain 
  • have your neck and spine assesed as tension and problems in these may cause referred eye pain and headaches
Light Sensitivity
  • wear sunglasses and a hat when outside 
  • wear sunglasses if driving
  • reduce night driving
  • do not watch screen shows with flashing lights
  • be aware of what lighting suits you
  • have block out blinds or block out curtains in the bedroom
  • investigate coloured lenses in prescrition glasses. Some people find that adding a coloured lens helps eye strain. An eye specialist will help you decide which ones help your vision
Of course in general, all fibromyalgia symptoms may be reduced by finding the right level and kind of exercise for you, finding ways to improve your sleep and finding an activity that helps you calm your nervous system by reducing stress. 
For myself my refered exercise is hydro therapy and I have written about it here. I force myself to go to bed at the same time each night and find that I sleebetter on the nights I have exercised. I take melatonin ten mg at night and also magnesium. A hot shower before bed often is also very soothing. Breathing exercises are my go to for reducing stress. 

I hope this helps you with understanding a bit more about fibromyalgia symptoms and especially that fibromyalgia can affect the eyes. 

Do you have any suggestions for reducing eye concerns in FibromyalgiaPlease leave your suggestion in the comments below. 

Fibromyalgia and eye symptoms

You might be interested in how fibromyalgia affects other parts of the body. Try:

12 comments:

  1. Anonymous5:53 PM

    I have had DES for a long time. It got to where I had to have a double cornal transplant. I wear scleral contacts which helped the dryness.

    ReplyDelete
    Replies
    1. Living with dry eye syndrome (DES) for so long, and needing a double corneal transplant, speaks to the seriousness of how these “invisible” symptoms can escalate. It’s a powerful reminder that eye discomfort in fibromyalgia isn’t just a nuisance—it can have real, lasting consequences.

      I’m so glad to hear that scleral contacts have helped with the dryness. That kind of practical insight is invaluable for others navigating similar struggles. I’m grateful you took the time to contribute. You’re helping others feel seen—and maybe even prompting someone to seek care before things worsen.

      Delete
  2. Anonymous10:44 AM

    I have fibromyalgia and a lot of this makes sense. Some days my vision is blurred other times I see double and at night. I have a hard time seeing when cars are coming towards me where it’s almost impossible to drive. I do use artificial tears to try to help the situation but most the time it does not..

    ReplyDelete
    Replies
    1. Thank you so much for sharing this—your experience adds such an important layer to the conversation. Blurred and double vision, especially when driving at night, can be incredibly distressing, and it’s something many with fibromyalgia quietly endure without realizing it’s part of the broader picture. The unpredictability of it all—some days clearer, other days not—can make it feel even more isolating.

      I hear you on the artificial tears. They’re often the first line of defense, but when they don’t help much, it can feel like you’re left without options. Your comment is a powerful reminder that these symptoms deserve attention and validation, not dismissal. I hope you’re able to find a care team that listens and works with you to explore alternatives that actually support your vision and safety.

      Your voice matters here, and I’m so grateful you added it.

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  3. Anonymous4:57 PM

    I have had FM for many decades and have had dry eyes since the 80s. Recently I learned it has caused scaring on my corneas that will worsen without treatment. This is medicine to take in the form of drops that’s my irratated eyes can’t take, so I am on a pill. The optomologist also has me using warm (microwaveable) eye pillows as the heat is supposed to cause better tear production. If you have very dry eyes as I do please see a Dr before it worsens

    ReplyDelete
    Replies
    1. Thank you so much for sharing your experience—what a powerful reminder of how long-term symptoms can quietly escalate without proper support. It’s heartbreaking that your dry eyes have led to corneal scarring, and yet your persistence in seeking treatment and adapting to what your body can tolerate is deeply admirable. The warm eye pillows sound like a gentle, accessible tool that others might benefit from too.

      So many people with fibromyalgia are told their symptoms are “just part of it” and left to manage alone. Your encouragement to seek medical care before things worsen is vital. I’m grateful you took the time to add your voice—it brings depth, urgency, and solidarity to the conversation.

      Delete
  4. Anonymous6:00 AM

    Wow! Thank you. My eyes have had all these symptoms and the eye doctor says everything is good. I’m going to share this with him.

    ReplyDelete
    Replies
    1. It's great to hear that the post resonated with your experience. So many of us have been told “everything looks fine” while quietly navigating symptoms that don’t fit the textbook. Sharing this with your eye doctor is a powerful step toward bridging that gap. You deserve care that sees the whole picture, not just the snapshot. Sending solidarity as you advocate for yourself—you’re not alone in this.

      Delete
  5. Anonymous5:32 PM

    I'm wondering if there could be a link between fibro and stigmatism and even Irlens syndrome? ?
    As I'm one of those people that have everything and a lot more..

    ReplyDelete
    Replies
    1. You have inspired me to write a post relating to this. 'Fibromyalgia and the Eyes: What We’re Finally Starting to See' https://fibrofiles.blogspot.com/2025/08/fibromyalgia-and-eyes-what-were-finally.html You’re absolutely not alone in feeling like your body collects syndromes like souvenirs. Emerging research does suggest a higher prevalence of astigmatism, dry eye disease, and meibomian gland dysfunction in people with fibromyalgia. So yes, there may be a physiological link, especially involving autonomic nervous system dysregulation and sensory processing issues that affect both pain and vision. As for Irlen Syndrome, it’s not an eye problem per se, but a visual processing issue—the brain struggles to interpret visual input, leading to light sensitivity, reading difficulties, and visual distortions. Many with fibro report photophobia, blurred vision, and visual disturbances, which overlap with Irlen symptoms. So while the connection isn’t fully mapped out, there’s definitely a shared terrain of sensory overload and neurodivergent processing.

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  6. Anonymous11:21 AM

    Thanks all of these symptoms fit the jigsaw
    For me ,A lot of Doctors wouldn't have a clue when you go to explain these symptoms.knowledge is key,
    Thanks again.

    ReplyDelete
    Replies
    1. That image of symptoms fitting together like a jigsaw really resonates—especially with fibromyalgia, where the pieces are scattered and often dismissed. You're absolutely right: knowledge is key, and sadly, many doctors still aren’t trained to recognize the full picture, especially when it comes to overlapping symptoms like eye discomfort and systemic pain.

      Your voice adds strength to the message that lived experience matters. When we name these patterns and share them, we’re not just advocating for ourselves—we’re helping others feel less alone in the maze. I’m so glad the post spoke to you.

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Thanks for your input