Showing posts with label me/cfs. Show all posts
Showing posts with label me/cfs. Show all posts

Saturday

How does Fibromyalgia differ from Chronic Fatigue Syndrome?

Fibromyalgia vs Chronic Fatigue Syndrome

Fibromyalgia Syndrome (FMS) and Chronic Fatigue Syndrome (CFS) have many symptoms in common. Research has found that there is a fine line between these 2 syndromes and the Arthritis Foundation says that between 50 to 70 percent of those with FMS fit the criteria for CFS.

The main difference between FMS and CFS are the symptoms of pain and fatigue - FMS is thought to have more widespread pain and CFS more fatigue.
When diagnosing CFS a doctor should expect a few differences.
FMS diagnosed with:
  • 11 to 18 tender points felt on the body
  • chronic widespread pain
  • sufferers often reporting having a specific traumatic event or long term stress prior to their symptoms commencing
CFS diagnosed with: 
  •  a low-grade fever, swollen glands or a sore throat 
  • chronic fatigue which is an overwhelming feeling of exhaustion that does not go away
  • sufferers of CFS tracing their symptoms back to a flu or viral infection 
is it Fibromyalgia or Chronic Fatigue Syndrome?

Do the differences really matter? In my opinion, and I am not a doctor, the differences do not matter because there is no cure or magic pill for either disease only treatment of the symptoms. The treatments that are tried are very similar and include lifestyle changes such as pacing, sleep therapy and gentle exercise, pain medications and antidepressants.  You can read about many of these treatment options on this site by looking through the list of articles.


This video aims to explain ME/CFS which includes Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, and Post Viral Fatigue Syndrome and help sufferers understand the illness and friends and family understand what their loved ones are going through. As you watch it you will see that Fibromyalgia symptoms are very similar to Chronic Fatigue Syndrome symptoms:
  • insomnia
  • unrefreshed sleep
  • post exertional malaise (tiredness after exercise)
  • pain after exercise
  • headaches
  • Irritable Bowel Syndrome (IBS)
  • brainfog
  • concentration problems
  • short term memory problems
  • muscle weakness
  • sensory overload
  • sensitivity to light
  • lack of energy

Key Differences

Primary Symptom 

Fibromyalgia (FMS): Widespread musculoskeletal pain and tenderness 

Chronic Fatigue Syndrome (ME/CFS): Persistent, unexplained fatigue that doesn’t improve with rest

Fatigue 

FMS: Common but secondary to pain 

ME/CFS: Central symptom, often worsens with exertion (post-exertional malaise)

Other Symptoms 

FMS: Sleep disturbances, “fibro fog,” headaches, sensory sensitivity, depression, anxiety

ME/CFS: Unrefreshing sleep, orthostatic intolerance, sore throat, swollen lymph nodes, joint pain

Diagnosis 

FMS: Based on pain in specific body regions lasting ≥3 months 

ME/CFS: Requires ≥6 months of fatigue plus ≥4 other symptoms

Triggers 

FMS: Genetics, trauma, infections 

ME/CFS: Viral infections, immune dysfunction, inflammation, hormone imbalances

Treatment Focus 

FMS: Pain management, physical therapy, lifestyle changes 

ME/CFS: Energy management, CBT, pacing, symptom relief

Sources: verywellhealth     Cleveland Clinic 

Shared Challenges

  • Both conditions lack definitive diagnostic tests.

  • Symptoms like brain fog, sleep issues, and fatigue overlap.

  • Many patients are misdiagnosed or diagnosed with both.

Can You Have Both Fibromyalgia and CFS?

Yes—some individuals meet criteria for both FMS and ME/CFS, complicating diagnosis and treatment. Understanding the dominant symptoms helps guide care.

Friday

Nutrition-Based Approach to helping relieve symptoms of Fibromyalgia

Nutrition and Fibromyalgia relief
Dr Oz, who was seen often on the Oprah Show and is a well known television celebrity in his own right, recommends Dr Jacob Teitelbaum's supplement regimen to relieve fibromyalgia and chronic fatigue syndrome.

Dr Jacob Teitelbaum's website has a free FMS Symptom Analysis Program to create a natural remedy treatment plan tailored to your specific symptoms.
Dr Teitelbaum has suffered from these conditions himself and has written books and articles about them. He is the lead author of four studies on the effective treatment for fibromyalgia.

Here is the link to Dr Oz's article on Fibromyalgia.

Dr Oz's Recommendation: Because Western medicine was slow to accept fibromyalgia, it is behind in its work; this is an area where patients will want to take a serious look at alternative approaches. Energy-based medicine could offer some important advances in treatment over the next decade, but since it has yet to be tested by independent research, I think it's premature to base your therapy solely on this approach. I'm more impressed by Teitelbaum's supplement regimen, and not only because he has tested his theories: I've put patients on this program with very good results. I would add counseling, as it should always be a part of fibromyalgia treatment. If after a couple of months you don't see improvement, talk to your doctor about drug therapy. 

Do you personally take supplements for your fibromyalgia that you feel really give you some benefit? I would love to hear about your experience with supplements.

This is linked up at Fibro Friday on Fibro Blogger Directory

supplements to help relieve symptoms of Fibromyalgia

Monday

My Learning Curve with Fibromyalgia


I am always learning a lot about Fibromyalgia even though I thought I knew a lot about it.

I was diagnosed with Fibro a long time ago. When I was first diagnosed I was under the misunderstanding that Fibro or FMS was the same as CFS - Chronic Fatigue Syndrome.  I learnt very early on that it wasn't true.

I was also one of those people who judged people with Fibromyalgia. This judgement came from lack of understanding about the condition. So now I have been on both sides of the coin - both the judger and the judged.

I also believed that Fibromyalgia had a stigma about it and that it was a diagnosis given when doctors could not find anything else wrong. I now know that it is a true condition.

Learning Curve with Fibromyalgia
I believe that it is difficult to educate the general population about Fibromyalgia. People just don't really want to know and they are overwhelmed with so much information about so many different things.

I believe that understanding is rare but Fibromyalgia is not.
 "Fibromyalgia is one of the most common types of chronic pain disorders. It is estimated that more than 5 million people in the United States have fibromyalgia." FIBROCENTER 

I believe that with any chronic condition you have to constantly educate yourself about your disease.

This year I have learnt new things about Fibromyalgia including - Fibromyalgia Patients Have Decreased Brain Connectivity in some regions of the brain, that CBD oil and low dose naltrexone (LDN) are both being used in treating Fibromyalgia. 

Learning to live with a fibromyalgia diagnosis is often overwhelming at first, and the learning curve can feel steep. You're not just managing pain - you're adjusting to a new way of understanding your body, energy, emotions, and lifestyle. Here’s a breakdown of what the learning curve typically looks like, and how to navigate it with more clarity and confidence.


 The Learning Curve of Fibromyalgia: A Realistic Overview

 Stage 1: Understanding the Diagnosis

“What is happening to me?”

  • Common Feelings: Relief (finally a name for the symptoms), disbelief, confusion, grief

  • Key Challenges: Accepting it’s chronic, navigating misinformation, dealing with stigma

  • First Steps:

    • Learn about central sensitization (your nervous system is overreactive to pain/stimuli)

    • Understand that it’s real, even if invisible

    • Find a doctor who takes it seriously


 Stage 2: Tracking and Identifying Triggers

“What makes it better or worse?”

  • Common Symptoms: Widespread pain, fatigue, brain fog, sleep disturbance

  • Key Tools:

    • Keep a symptom journal (sleep, activity, food, pain levels)

    • Identify flare triggers: stress, overexertion, weather changes, poor sleep, certain foods

  • Start slow: You don’t have to figure it all out at once


 Stage 3: Lifestyle Adjustment and Self-Management

“How do I live with this?”

  • Learn pacing: Avoid the “push-crash” cycle of overdoing it on good days and crashing after

  • Start low-impact movement: Gentle yoga, walking, tai chi

  • Focus on sleep hygiene: Crucial to managing symptoms

  • Experiment with diet: Some find symptom relief by reducing gluten, sugar, or processed foods

  • Mind-body techniques: Meditation, mindfulness, CBT, or ACT can help manage the emotional toll


 Stage 4: Treatments and Trial-and-Error

“What actually helps me?”

  • Medications: Low-dose antidepressants (e.g. amitriptyline), gabapentin, pregabalin, or duloxetine may be helpful—but effects vary

  • Supplements: Magnesium, CoQ10, vitamin D—talk to your doctor

  • Topical pain relief: Tiger Balm, lidocaine patches, Voltaren gel

  • Professional support: Pain specialists, physiotherapists, occupational therapists, or therapists who understand chronic illness


 Stage 5: Advocacy and Mental Resilience

“How do I build a life with this?”

  • Learn to say no without guilt and prioritize energy

  • Find a support system: Online communities, local support groups

  • Manage flare-ups with compassion, not blame

  • Deal with the invisible illness issue: Some people won’t understand—you don’t need their validation

  • Explore purpose and joy beyond productivity


 It’s Not Linear

  • You’ll move back and forth between stages.

  • Flare-ups can knock you down even when you think you have it handled.

  • Self-kindness is the most important skill you’ll ever learn in this process.

If you are new to Fibromyalgia you may be interested in the following information so you can start your learning curve:

NEW BELIEF: No 1. You can teach an old dog new tricks if they are willing to learn.
My Learning Curve with Fibromyalgia