If you have a fibro blog yourself or if you are looking for real stories about fibromyalgia from the people who have fibromyalgia visit the Fibro Blogger Directory.
Showing posts with label connect. Show all posts
Showing posts with label connect. Show all posts
Wednesday
Fibro Blogger Directory
If you have a fibro blog yourself or if you are looking for real stories about fibromyalgia from the people who have fibromyalgia visit the Fibro Blogger Directory.
Tuesday
For Fibromyalgia Awareness Day
This is my contribution to FAD Fibro Awareness Day -
Let's show the world how many we are and what fibro is about. Let's not be invisible anymore.
Do you have a blog or website about Fibromyalgia? Would you like to network with other fibro bloggers? Would you like to add your blog to the ever expanding list of Fibro voices out there? I think it's a really great way to support each other, get more visitors to our sites and stand as a united group of fibro sufferers. Maybe we can even do some good.
If you are interested go to the Fibro Blogger Directory
National Fibromyalgia Awareness Day aims to increase awareness of FM and provide support to those coping with the illness.
Friday
What's your top 3?
What helps your fibromyalgia?
We all need ideas because we all need to self manage our own condition. Being pro-active is important as there is no known cure, so far, and therefore your doctor can only help to a certain level.
The EULAR guidelines for the management of fibro recommend making non-pharmacological interventions a priority.
Please post your own suggestions in the comments so we can make a large list.
This may help on days when we are low and can't think what to do to help ourselves (No one else can really help us! I heard a funny thing "Doctors are just there to amuse us!")
These are 3 that I can think of that help me.
- The spa bath or hot tub
- Getting to bed before 10.30 pm
- Thinking positive
- Self-education
- Stress reduction
- Exercise
Mayo Clinic's options for coping include:
- Relaxation: Deep-breathing exercises, Progressive muscle relaxation, Meditation and Visualization.
- Avoiding negative self talk and turning it into positive talk.
- Asking for help and having a list of people on hand for the difficult days.
You might also like to read: What works for me to help fibromyalgia
Monday
You need support from others when living with Fibromyalgia
Fibromyalgia, like many other conditions, can lead to isolation and loneliness. Social isolation is a problem for many people and especially for those with chronic illness and chronic pain.
A huge part of Fibromyalgia is the pain, which in itself is isolating, as we feel that others do not understand or want to know what we are going through. This can make us withdraw.
Sufferers need to make an effort to get support and I feel getting support really makes a difference on so many levels. It is a great way to find out what treatments may work for others and may be worthwhile to try. It is wonderful to just be with others who understand what you are going through. Connecting with others can provide much comfort.
Sufferers need to make an effort to get support and I feel getting support really makes a difference on so many levels. It is a great way to find out what treatments may work for others and may be worthwhile to try. It is wonderful to just be with others who understand what you are going through. Connecting with others can provide much comfort.
One friend, one person who is truly understanding, who takes the trouble to listen to us as we consider our problems, can change our whole outlook... Dr Elton Mayo
Luckily there are a few options for finding support - we can attend a pain clinic (try your local hospital), find a local support group that has get-togethers or find some online support if getting out is not possible due to mobility issues or the closeness of meetings.
Below I have started a list of different Fibromyalgia support groups available and I would love to hear from you if you have some to add.
SUPPORT MEETINGS
Fibromyalgia Meetups - worldwide
National Fibromyalgia and Chronic Pain Association (NFCPA) List of American Support Meetings
Canadian Support Groups
ONLINE SUPPORT:
FIBRO FORUMS
Daily Strength Forum Fibromyalgia Support Group
Fibromyalgia Forum founded in 2008 and run by volunteers who have Fibromyalgia.
Patients like me Fibromyalgia Forum with over 112,000 members.
Patient
FACEBOOK GROUPS: There are hundreds of these groups. I have listed the one I am in.
FIBRO CONNECT To join this group please 'Friend' me on Facebook then request an invite.
Below I have started a list of different Fibromyalgia support groups available and I would love to hear from you if you have some to add.
SUPPORT MEETINGS
Fibromyalgia Meetups - worldwide
National Fibromyalgia and Chronic Pain Association (NFCPA) List of American Support Meetings
Canadian Support Groups
ONLINE SUPPORT:
FIBRO FORUMS
Daily Strength Forum Fibromyalgia Support Group
Fibromyalgia Forum founded in 2008 and run by volunteers who have Fibromyalgia.
Patients like me Fibromyalgia Forum with over 112,000 members.
Patient
FACEBOOK GROUPS: There are hundreds of these groups. I have listed the one I am in.
FIBRO CONNECT To join this group please 'Friend' me on Facebook then request an invite.
You may also be interested in the following:
Fibro Blogger Directory with over 5,000 in the group
Fibro Files with over 2,500 people in the group
FIBRO SUPPORT in Australia will be a coming blog post - watch this space.
Fibro Blogger Directory with over 5,000 in the group
Fibro Files with over 2,500 people in the group
FIBRO SUPPORT in Australia will be a coming blog post - watch this space.
The emotional support derived from support group participation can help reduce stress, which can have a positive impact on health. ~ Winchester Hospital.
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