Do you think your fibromyalgia is affected by the weather?
Do you hate hot weather or cold weather or weather extremes?
Abstract from Arthritis Care and Research:
While patients with fibromyalgia often report that specific weather conditions aggravate their symptoms, empirical studies have not conclusively demonstrated such a relation. Our aim was to examine the association between weather conditions and daily symptoms of pain and fatigue in fibromyalgia and to identify patient characteristics explaining individual differences in weather sensitivity.
Conclusion.
Why Research Might Miss What Patients Feel or why “lack of uniform effect” doesn’t mean “no effect at all.”
Short study durations may miss seasonal effects
Small sample sizes limit generalizability
Individual variability is hard to measure in group data
Subjective symptoms like pain and fatigue are influenced by many factors, including stress, sleep, and hormonal shifts
We decided to conduct our own survey with people who have fibro! We created a simple and quick, multiple-choice survey to get the real results on whether the weather affects people with fibromyalgia. We found that the majority of people who joined in the survey said that their fibromyalgia symptoms WERE affected by the weather.
Community Survey Highlights
72% said weather changes definitely affect their symptoms
18% said sometimes
10% said not really
Most common triggers:
Cold, damp weather
Sudden barometric pressure drops
Heatwaves and humidity
I think we all need to stick with the correct information about Fibro and only read the negative stuff when we want to write to the author of the article. Learning happens when you share and talk together, great going!
ReplyDeleteI agree Carolyn, that's why I have added a survey about Weather and it's affects on Fibromyalgia so we can learn from the experts - the people who have fibro
DeleteThe weather is a serious issue for me. Cold weather is a nightmare. Wind that is cold, and temperature below 60's I start having serious problems. I really wish that as a child and young woman all this wonderful information had been available.
DeleteDear anonymous, I'm so sorry you have been struggling with these issues since you were a child. Living with Fibromyalgia is difficult and we understand the extra pain that cold weather and wind can cause.
DeleteI'm so grateful 🙏 I found this cause I'm completely alone and lost in my struggles
ReplyDeleteI'm so glad you found it too and hope you can find some sense of connection here. We are certainly a community that understands what others go through, including the loneliness of living in pain
DeleteWeather (as do the multiple overlapping symptoms), affects those of us with FMS personally and differently. I cannot tolerate the increase in pain etc during any damp weather - be it humidity and heat or rain, slush sleet. I love a cool, dry and sunny day in any season.
ReplyDeleteCool, dry, sunny days feel like a rare kind of grace, don’t they? There’s something about that clarity in the air that seems to ease the internal fog and tension. I’m glad you’ve found a climate that feels gentler on your system, even if it’s fleeting.
DeleteYour comment also reminds me how important it is to honour our individual patterns and preferences. Research may not always reflect the full picture, but lived experience speaks volumes. Thank you for adding your voice to this conversation—it helps others feel seen.
I do have worse pain on days with a high humidity before a storm and really cold days too
ReplyDeleteWhat you’ve described is something many in the fibromyalgia community relate to, even if science hasn’t fully caught up yet. These weather-related flares remind us how sensitive and responsive our systems are—and how much grace we deserve in navigating them.
DeleteI’m really grateful you spoke up. Your voice helps validate others who might be wondering if it’s “just them.” It’s not.
I can say that the weather does effect fibo in my body. The high winds too really have a great effect, setting the cold in my legs. My hands and feet in extreme pain in the winter. The extreme heat and swelling in summer is awful.
ReplyDeleteWinter pain in the hands and feet, summer swelling and heat—it’s like there’s no perfect season, just different kinds of discomfort. And yet, naming it like you’ve done here helps others feel less alone. It also reminds us that while research may not fully capture these patterns, our lived experience matters.
DeleteI’m so glad you added your voice to the conversation.
Weather affects Fibromyalgia in my body
ReplyDeleteThanks for joining and confirming that
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